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Since 1996, the Thalassaemia International Federation (TIF) has produced a wide array of publications on thalassaemia and sickle cell disease
Last Update: Fri Nov 8th, 2024
This indispensable resource has been meticulously crafted by TIF to inform and empower individuals living with thalassaemia, along with their families and caregivers, by offering extensive nutritional guidance tailored to their unique needs.’
A comprehensive publication on nutrition in two inherited haemolytic anaemias; thalassaemia and PKD, aimed at offering a critical review of existing knowledge, benefiting both haematologists and dietitians in managing patients with these conditions.
The first-ever Guidelines for the Management of α-thalassaemia serve as an indispensable resource for healthcare professionals, researchers, and others involved in the care of individuals with this complex, genetic blood disorder.
A useful Travel Guide providing considerations, tips and guidance for people with thalassaemia, sickle cell disease (SCD), and rare anaemias who intend to travel abroad.
A series of factsheets that offer an easy-to-understand overview of what Europe has achieved so far in key health policy areas, such as Access to Drugs, Cross Boarder Healthcare, and more.
These six TIF-created booklets contain simple, useful information about thalassaemia that everyone should be aware of.
Ali T. Taher, MD PhD FRCP
Khaled M. Musallam, MD PhD
Maria Domenica Cappellini, MD FACP
Prepared by: Farmakis, D.
Reviewed by: Eleſtheriou, A., Bain, B.
Extracted from TIF’s “Guidelines for the Management of Transfusion-Dependent Thalassaemia (4th Edition, 2021)” Prepared by: Thalassaemia International Federation Based on: Guidelines for the Management of Transfusion-Dependent Thalassaemia (4th Edition, 2021)
Maria Domenica Cappellini, MD FACP
Farmakis Dimitrios, MD, PhD, FESC
Porter John, MBBS, MD, MPH, FRCP
Ali T. Taher, MD, PhD, FRCP
All the latest updates of TIF’s Vaccinations & Therapeutic Drugs Guide for COVID-19 gathered in a single document.
A comprehensive infographic with a head-to-head comparison on the most essential aspects of BMT, Gene Therapy & Gene Editing as potentially curative procedures for patients with β-thalassaemia.
The second educational brochure from the TIF’s ‘Gene Therapy’ booklet series, providing an in-depth view of how this revolutionary therapy works in patients with β-thalassaemia major.
An educational brochure explaining the inheritance patterns of β-thalassaemia and the choices available for an ”at-risk” couple to have a child without the disease.
This document compiles information about the coronavirus pandemic specifically addressed to patients with sickle cell disease (SCD).
A document seeking to offer a risk level classification for thalassaemia and SCD patients in relation to the ongoing COVID-19 pandemic.
A list of studies/clinical trials for developing treatments and vaccines for the COVID-19 pandemic. This list is by no means exhaustive, since research in this field is ongoing.
A guide on blood adequacy and safety during the COVID-19 pandemic, based on official recommendations from internationally recognised bodies.
A Patient Care Pathway recommending adjustments to be implemented in the admission of patients to haemoglobinopathy centers, units, or clinics during the COVID-19 pandemic.
An informational leaflet about the COVID-19 pandemic with a special focus on the challenges it presents for patients affected by thalassaemia and sickle cell disease (SCD).
An easy-to-use, educational tool for thalassaemia, featuring definitions of important terms on the prevention, management, treatment, complications, and other aspects related to the disease.
An educational leaflet aimed at improving the awareness and comprehension of people with thalassaemia and other haemoglobinopathies worldwide about gene therapy.
Ali T. Taher, MD PhD FRCP
Khaled M. Musallam, MD PhD
Maria Domenica Cappellini, MD FACP
Prepared by: Farmakis, D.
Angastiniotis, M.
Eleftheriou, A.
Author: Old J.
Reviewed by: Angastiniotis M., Petrou M., Traeger-Synodinos J.
Eleftheriou A., Angastiniotis M.
Aimiuwu E., Thomas A., Roheemun N., Khairallah T. et al.
For a comprehensive list and to access these resources, please visit TIF’s official website.