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Join Us in Building a Healthier Tomorrow for Thalassemia Patients Everywhere

By donating to The Vancouver Thalassemia Society, you’re joining a community dedicated to improving quality of life, fostering awareness, and advancing treatments for a brighter, healthier future. Together, we can provide hope, support, and meaningful change for those in need.

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The Vancouver Thalassemia Society of BC

News & Event

Casgevy: A Year of Transformative Gene Therapy and Expanding Hope

December 2025 Update: From Breakthrough to Real-World Impact It’s been an incredible journey since the U.S. FDA made history by approving Vertex and CRISPR Therapeutics’ gene-editing therapy, Casgevy (exagamglogene autotemcel), for both Sickle Cell Disease (SCD) and Beta Thalassemia. What began as a monumental scientific

The Season of Giving is a Season of Hope

As we approach the end of the year, our thoughts naturally turn toward generosity, gratitude, and family. It’s the season of giving. But for many, the greatest gift isn’t something wrapped under a tree, it is the gift of hope. 🎄 For individuals living with thalassemia, hope

Patient Education Night

This special evening will feature presentations and updates from Dr. Kevin Kuo and Josie Sirna from the Thalassemia Foundation of Canada (TFC). It’s a wonderful opportunity to hear the latest medical information, ask questions, and connect with other patients and families in our community.

 Patient Education Night

We are excited to invite you to our upcoming Patient Education Night on Thursday, September 25th, at St. Paul’s Hospital.

Summer Vibes & Community Fun

The Vancouver Thalassemia Society of BC is delighted to invite you to our Annual Summer Picnic — a perfect opportunity to relax, enjoy great food, and spend quality time with friends and family. 📅 Event Details Whether you’re a long-time member or new to our community, this picnic is

Open Board Meetings

Canadian Blood Services is committed to operating in an open and collaborative manner with Canadians and holds two open board meetings each year. Canadians are encouraged to attend and observe the Board of Directors as it conducts a typical meeting.   The next open board meeting

TOGETHER FOR THALASSAEMIA

On May 8, 2025, the global thalassaemia community will come together to celebrate International Thalassaemia Day. This year, we proudly embrace the theme, “Together for Thalassaemia: Uniting Communities, Prioritizing Patients”, and rally under the powerful slogans “#WeAre1“ and “PatientsFirst“. Every year on 8 May, iconic monuments and buildings around the

Niyati story on Canadian Blood Services

For someone like me, living with thalassemia major, regular blood transfusions every 21 days since I was 1 year old have been my lifeline and a reminder to be grateful. Growing up with the belief that my life might be short, due to these donations

Exagamglogene Autotemcel for Transfusion-Dependent β-Thalassemi

Abstract BACKGROUND Exagamglogene autotemcel (exa-cel) is a nonviral cell therapy designed to reactivate fetal hemoglobin synthesis through ex vivo clustered regularly interspaced short palindromic repeats (CRISPR)–Cas9 gene editing of the erythroid-specific enhancer region of BCL11A in autologous CD34+ hematopoietic stem and progenitor cells (HSPCs). METHODS We conducted
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